Healthcare Setting

Find useful information to navigate student health needs in the healthcare setting with the following resources:

Talking With Providers About Treatment Choices and Evidence-Based Programs

Families are encouraged to ask questions to their child’s doctor or provider about the treatment being recommended. This resource includes questions that families are encouraged to ask their child’s providers.

View the ASK Resource Center PDF

Care Notebooks

A Care Notebook is an organization tool for families who have children with disabilities or special health care needs. The notebook is used to keep track of important information about a child’s healthcare.

View the ASK Resource Center PDF

A FAMILY TOOLKIT: PEDIATRIC-TO-ADULT HEALTH CARE TRANSITION

This toolkit was developed for families to use during pediatric-to-adult HCT and includes resources for both parents/caregivers and youth/young adults.

Read the Got Transition PDF

Family Toolkit: Pediatric-to-Adult Health Care Transition Webinar

This webinar reviews helpful resources and provides insight from a mother of a transition-aged young adult.

View the Got Transition Webinar

Got Transition

Got Transition is the national resource center on healthcare transition (HCT). It’s aim is to improve transition from pediatric to adult healthcare through the use of evidence-driven strategies for healthcare professionals, youth, young adults, and their families.

Visit the Got Transition Website

From Coverage to Care

Coverage to Care (C2C) is an initiative, developed by the Centers for Medicare & Medicaid Services, to help you understand your health coverage and connect you to the primary care and the preventive services that are right for you, so you can live a long and healthy life.

Discover the C2C Initiative

Care Coordination

When doctors and other health care providers work together and share information, patient's needs and preferences are known and communicated at the right time to the right people, and the information is used to provide safe, appropriate, and effective care. This can help to keep patients healthier longer, better manage chronic conditions, and experience care that is consistent with their goals.

Centers for Medicare and Medicaid Services

Health Information Center

The Health Information Center provides information to help families work effectively with doctors and other health care professionals and providers to develop a family-centered care plan.

Learn more from PACER

Helping Your Child Cope During and After Serious Illness, Injury or Hospitalization

Traumatic stress symptoms are common after a serious illness, injury, or hospitalization. Even though it is your child who is ill or injured, your whole family can be affected. It's normal for you, as a parent, to feel overwhelmed or unprepared to help your child (or yourself) cope.

Learn more from NCTSN

Medical and Educational Models

When parents take their child to a doctor or therapist and have a medical or psychological evaluation done for their child, recommendations are made to benefit the child. Doctors often make recommendations for medical or therapeutic services to benefit the child and sometimes suggestions for school services. There have been times when medical doctors have told families to request a 504 Plan or an Individualized Education Program (IEP) from their child's school. It is important to remember this fact: Schools have an obligation to consider any information from outside providers but are not required to follow those recommendations.

View the ASK Resource Webpage

Understanding HIPAA: What Parents Need to Know About Privacy & Their Adult Child's Health Information

This document answers frequently asked questions (FAQs) about when parents can access their adult child's protected health information. You will find information about parent's rights to access their minor child's protected health information.

Read the PHI PDF

Iowa Compass

Iowa Compass connects people with disabilities and complex health-related needs to services and supports in their communities throughout Iowa.

Learn more from the CDD

Iowa Community Resources

This guide is designed as a resource to individuals with intellectual or developmental disabilities, and their guardians and family members, in finding the information and supports they may need. It may also be helpful to stakeholders throughout the Iowa service delivery system to better identify and address gaps in resources, or otherwise assist persons living at Woodward or Glenwood State Resource Center or in the community in accessing needed services and supports. Please share this guide with anyone who may benefit from its contents.

Read the Iowa Department of Human Services PDF